Your CVS Story

This page is dedicated to you! Here you can find links to stories written by other CVS sufferers. It’s great to know we aren’t alone, and even better to relate to people on a deeper level. Reading the thoughts of others who know what I go through has been invaluable! I hope you get as much from them as much as I have. If you would like to have your own CVS story added on this page, please send it to me via email!

Uhuru (and what it feels like) by Iris Moulton is probably my favorite of any original CVS work I have read. Uhuru means freedom in Swahili. This story was originally posted on the CVSA website. It’s about how this person feels living life from a hospital bed, but experiencing the freedom that comes with the end of an episode and discharge from the hospital. I deeply relate to what this person wrote. We are kept prisoner by the episodes until they end. When I finally come out of that dungeon of nausea, the joy of life washes over me. I cannot wait to go out and LIVE LIFE nausea free. Uhuru: check it out.

Cyclic Vomiting Syndrome Story by C.D. Mannion is a great narrative from a fellow sufferer I know through the CVSA Message Boards. His words are powerful, check him out!  ***This is an original work of literature. This story may not be reproduced, in part or whole, without written consent from the original author.***

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4 thoughts on “Your CVS Story

  1. Michle says:

    Hi Jeni, sorry to hear about your son. Stay strong. I know things work differently in the US to the UK, but we now manage Joseph’s needs at home completely for CVS, going to A&E in the hospital on every occasion was a nightmare for all involved.
    Our GP has prescribed sedatives we can give Joseph at home at the early onset of an episode and we manage it as best we can – keeping him hydrated being the biggest challenge.
    Good luck and keep in touch.
    Mx

    Liked by 1 person

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