Social media is an effective and efficient way to spread the word about CVS and raise awareness in the medical community. Check out how these CVS sufferers have chosen to do their part!
We all need support, and these groups are a great way to meet others with CVS, ask questions, and share ideas. I encourage you to click the links below to visit and join the Facebook support groups today!
- CVS Speaks! Please visit and “like” them! A social media outreach organization dedicated to connecting CVS sufferers and their families with online support groups and media resources. It is a volunteer organization seeking to raise awareness of Cyclic Vomiting Syndrome, and to help all people of CVS to find the support group that fits their needs. CVS Speaks also assists and supports the Admins of a variety of groups to help maintain the highest quality groups of Facebook.
Email CVS Speaks at: firstname.lastname@example.org
The following groups on Facebook currently make up the collective network called CVS Speaks: (This list is, however, ever evolving…)
- Cyclic Vomiting Syndrome (CVS) Support Group
- Caregiver’s Group
- Sufferer’s Only Group
- Men’s Crew
- Rare But Not Alone
- Raising Kids with CVS
- Art Experience
- CVS New Zealand Support
- Strong Mamas (Mothers with CVS)
- Cyclic Vomiting Syndrome Association also has a Facebook page in addition to their website. Check it out!
- Trinity’s Troops is a Facebook page with over 10,000 likes! It started with a status update from a mom of Trinity, a young girl with CVS. They have even sold t-shirts to raise money for CVSA and awareness of the disorder! Check them out.
- Colleen Rice, a CVS sufferer, AND dedicated mother of a child with CVS, has a Facebook page titled “Rare But Not Alone – Raising Kids With Cyclic Vomiting Syndrome“.
- Visit my own personal Facebook page called Cyclic Vomiting Warrior.
- Cyclic Vomiting Syndrome Association is one of the best websites we have when it comes to resources on CVS. It might take months to read all the information within that site. Visit them today!
- Rare But Not Alone is a website created by Colleen Rice, a CVS sufferer, AND dedicated mother of a child with CVS. She also wrote a book, a blog, and has a Facebook page (all below).
YouTube Videos about CVS
- Courtagen Life Sciences: Dr. Richard Boles and patients with CVS
- Cyclic Vomiting Syndrome Association UK – Living With CVS
- Thangam Venkatesen MD, Medical College of Wisconsin: Cyclic Vomiting Syndrome
- CVSA Medical Advisors and CVS Specialists speak about CVS
- CVSA: What is CVS?
- Chandra Wilson, from Grey’s Anatomy, on “The Doctors” (her real-life daughter has CVS)
- Dr. Li (Children’s Hospital of Wisconsin): What is CVS?
Presentations from the CVSA Conference June 2014
- Stress and Anxiety (Power Point Presentation)
- Endocannabinoid Signaling and Stress in CVS
- The Genetics of CVS: Dr. Richard Boles