Carebags are the best puke bag you’ll ever use!

So, not all people get excited when a new and revolutionary puke bag is invented. But we CVSers do!!! How many of you wrestle with buckets, pails, plastic Wal-Mart bags, Ziplocs, or loud and crackly blue emi-bags when in episodes? How many times have you had one of those bags leak and ruin everyone’s day? How about when it gets full, but you’re still vomiting, and there’s nowhere to place the other bag without spilling the liquid? How many times have you needed a puke bag, but had to reach for the closest substitute. How many times have you gone somewhere, and needed to have a puke bag on you at all times, so you needed to carry a bag or purse to store it, because you can’t fit your puke bag into your pocket. Especially the ladies. What if we dress up and go out on the town? Where will we store our large, bulky items into which we vomit?

Thankfully, there is a brilliant company from France, called Clean Is, that came up with something different. Carebags from CleanIs are the newest thing in the field of containing medical waste. No, I don’t work for this company. I have no reason to promote them whatsoever. But I did stumble across their product, and I couldn’t resist trying it. So I bought some and tested them out upon arrival. They worked so well that I felt the entire CVS community needs to know that they are an option.

I’ll keep this short and sweet. They are freaking awesome! You will never go back, and you will wonder what you ever did before you had these!

  1.  They are small (25cm x 25cm), and made of a material like trash bags. You can fold it up and put it in your pocket, or even stuff it down your bra without it being noticed. They aren’t bulky at all. In fact, you could probably fit a couple in your bra (without increasing cup size lol)! They are discreet, and no one will realize what you are carrying around with you, even if you flash it briefly. So, portability is a huge plus for this product!
  2. There is a little absorbent pad, able to absorb up to 16 oz. (450 ml) of liquid, which lives inside this small bag. When you first see it, you won’t believe me. Period. You won’t. So just try it and prepare to be amazed…

So, I then proceeded to pour coffee cups full of water into the bag. After the first cup I watched the pad slowly absorb the liquid, and thought, “Oh, ok. It will eventually soak it all up.” I just needed to be a little more patient. By the time I got the 2nd coffee cup of water in the bag, there was no more liquid to be seen, and a small corner of the pad was swollen. I kept going. The pad continued to soak the liquid and became swollen beyond belief. As the pad continued to become saturated, it morphed into a gel type substance and no longer looked like the pad. I fit 10 full coffee cups of water into that bag, before the pad (which had become a huge wad of gel) began to super-saturate. Before the 10th cup, the bag was full of gel. No liquid. I could run my fingers through the substance without getting wet hands. The bag has a draw string closure like a garbage bag. I closed it up and turned it upside-down. Not one drop of liquid or gel leaked!

It’s amazing folks, simply amazing! Also, the gel absorbs the smell of the vomit! So, you can stop worrying about the smell bothering your caregivers, as well as making you need to vomit even more. Also, if you are driving down the road (yes I have been in that situation), or your caregiver is driving you, and you drop it because you can’t hold your arms or head up, it won’t spill and cause a stinky, nasty mess to clean up later! Sooooo cool!

I bought a case of these on Amazon for about $25. Very affordable! But guess what? The company that created the bags, CleanIs (French company) has teamed up with CVSA in efforts to help us raise funds! Click this link for the instructions on how to purchase these through CVSA and Amazon Smile. From now until the end of December, you can go to AmazonSmile to purchase these, and a portion of the cost is donated back to CVSA. Also, the company will give CVSA members a $3 discount on the product to purchase them through the AmazonSmile link, so that CVSA can receive the proceeds. If you haven’t signed up for AmazonSmile yet, you’ll have to go there and designate the CVSA as your charity of choice to receive the proceeds. There is a process to do this, and if you need instructions they are all given in detail here.

This is a great way for CVSA to benefit, but it’s also a great way for US to benefit. These things truly make life as a cyclic vomiter a little bit easier. I truly hope this can help others like me.


My Pretty Binder for My Ugly Disorder

Written on 5/6/14

I am in the process of making a “CVS Binder” (a two inch 3 ring binder) that will basically go everywhere I go and that I will give to ER staff and doctors who don’t know me.

I’ve included the following “sections” separated by tab pages:

An “intro” section at the front where I typed a brief statement (“Hello. My name is Angie and I have CVS”) telling who I am and what I have going on with me. I mentioned that I might not be able to communicate but that all the information they need is in my binder that I brought for them. This section also has the “What is CVS?” document from the CVSA homepage, and some other 1 page documents describing CVS in general and briefly.

A “current medications” section where I list in detail meds, dosages, frequency, and time of day taken. i list current meds regularly taken, as well as meds that I only occasionally take including over-the-counter supplements and vitamins.

A “medical history” section where I chronologically list every doctor appointment and lab results associated with it. Also any diagnosis complete with the diagnosis code is highlighted throughout. I used different colors for different docs. I used green to indicate episodes, and I even used orange to document events like vacations that happened around episode time that show a strong correlation to positive excitement. Also my periods are documented and they also show a very strong correlation to episodes.

(It has been super helpful going back through all my old medical history documents and piecing it all together chronologically. It turns out that the two times in my life when I had episodes every 1-2 months was when I was using the Nuva Ring! Now I’m CONVINCED that my hormones are one of the biggest players in this game my body is playing.)

A “tests” section where I have copies of all the important tests they have done to me over the years to rule out everything else and diagnose me with CVS. Including MRI results and blood work.

An “episode diary” section where I have copies of all my entries for each episode and list detailed info about the actual individual episode I was experiencing at that moment.

An “Empiric Guidelines” section where I have many copies of it to give to anyone I think will read it.

A “CVSA” section where I have Code V articles, a list of the CVSA medical advisors and their contact information. And any other general CVSA stuff I want to throw in.

And a “research articles” section where I have all the lists of the research articles as well as a few of the more important articles printed out to keep there for doctors to reference.

My goal is to have 3 separate identical binders in the end. One for each vehicle so I’ll always have one with me. I’ll take one when I travel and on vacation. I travel alone for work a lot, and other people have no idea about my disorder, so this could help if I were in a situation where other people had to care for me that aren’t used to doing so. This binder will introduce anyone to CVS, and give them the ability to look back into my medical past in as much detail as they want without having to go find or wait on records.

I have this little dream that I could have to go to the hospital alone, and I hand them the binder at the ER, and they read it, and I don’t have to speak a word because they understand what to do, and then they do it! Ha! Well, wouldn’t it be nice if it were to work that way, but I doubt it will. I’ll still dream it though [smile]