Through journaling I have been able to identify several triggers. A trigger is something that can cause me to begin an episode. Like a ticking time-bomb.  A trigger is not a “cause” of the disorder. Many factors pile on top of each other, until the stack blows. A trigger might just push me over the edge, when I would have avoided an episode otherwise. Triggers can change, and mine have changed numerous times over my 8 year course of illness. Some triggers cease to be triggers, and new ones arise. It’s an ever-changing process.

Here is a list of my known triggers, past and present:

  • Hormones (my own and the ones I’ve put into my body) and menstrual cycle
  • Positive Excitement (holidays, vacations, social activities, and anything I’m excited to do)
  • Emotional Stress (I have mood dysregulation)
  • Hot weather (it depletes my energy)
  • Exhaustion and/or lack of sleep
  • Anxiety and/or panic attacks
  • Over-exertion
  • Physical illness (like a cold or flu)
  • Heartburn
  • Fatty, greasy, or deep-fried foods
  • Gravy of any type
  • Tomato paste
  • Jalepenos
  • Cilantro
  • Excessive alcohol
  • MSG and other preservatives
  • High protein meals

Here is a list of things that don’t necessarily trigger me, but are commonly known to trigger others with CVS. I avoid the last 4 items on this list for various reasons.

  • Chocolate
  • Aged cheese
  • Wine
  • Dairy
  • Beef
  • Pork
  • Aspartame (artificial sweetener)
  • Nitrites (used to preserve meat)
  • Caffeine

If you have a trigger that I haven’t listed here, please share it with everyone. I learn new triggers frequently, and it is always helpful to hear what others have learned to avoid also.


2 thoughts on “Triggers

  1. I’m only approving this very annoying comment for awareness purposes…. I definitely don’t have Lyme,bc I was tested for that many years ago. Plus, my symptoms don’t match Lyme disease symptoms at all. No, actually I HAVE Cyclic Vomiting Syndrome. Nearly 10 years of testing and research tells me so. Cyclic Vomiting Syndrome is real. There is an “unknown etiology (cause)” bc it is a neurological phenomenon not previously seen in medicine. Educate and enlighten, please, rather than spreading more misinformation and stigma.


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